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  1. I hope you are doing well. I began reading Simon’s book today. I am about halfway through it. I wanted to thank you for writing it! I strongly believe your/his book should be required reading for all doctors and nurses. I am angry any doctor would say that a child is “incompatible with life!” It also angers me that they seemed to want to hurry his demise instead of providing him with the best care possible so he could live as long as God wanted him to. Thank you so much for fighting for him like you did. He was a precious child from what I’ve read. And I know God is using Simon to help other children like him and their families! May God bless you and your family abundantly.

    Stephanie G. Cox, M.S.Ed
    Author of Gentle Firmness.

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