Welcome to our website! My name is Sheryl Crosier. I’m the author of the books, “I’m Not a Syndrome — My Name Is Simon” and “Hello, My Name is Simon,” as told by Simon’s big brothers. The purpose of this website is to let you know more about the books and the chromosomal disorder, Trisomy 18, also known as Edward’s Syndrome. Simon’s story was also features in an award winning documentary, “Labeled.” We will also keep you updated on Simon’s Law, a parental decision making bill.
My son, Simon Dominic Crosier was born on September 7, 2010, in St. Louis, Missouri. He was diagnosed with Trisomy 18, and lived for 3 memorable months before passing away in December 2010. Despite his disabilities, Simon had a huge impact on all who came into contact with him. Simon’s big, expressive eyes communicated a wisdom that transcended his innocence.
The book is about Simon’s short and meaningful life, his family and his wonderful caregivers. But more importantly, this story documents our family’s battle to advocate for our precious son. We had to overcome challenges put in our way by the medical community and even extended family members who never valued Simon’s fragile existence the way we did. We sincerely hope this story will help motivate health-care professionals and anyone else that reads this account. We want them to understand that special-needs children are God’s gift to us all. Their lives possess inherent dignity and value, and they deserve the best care.
I invite you to read the excerpts posted on this website to get a preview of the book. We invite your comments and questions, and thank you in advance for your interest in our story and in standing up for kids with Trisomy 18 and other special needs.
Sheryl Crosier-Simon’s Mom
Simon’s books are available on Amazon in both print and e book versions.
“Labeled” documentary http://www.labeledthemovie.com
More information on trisomy 18, 13 and related disorders http://www.trisomy.org